First, yesterday 3/18 marked the two years since the passing of my mother and I wanted everyone to know that we remembered her; I love you mom.
The second round was nothing like the first. I guess primarily that because my blood properties held together this round I got the full five days of treatment instead of 3 the first time, which may account for the difference.
At any rate I stopped eating on Sat. and am still without an appetite but forcing myself to eat and drink as I can. Nothing tastes good. Water is bad coke is bad sweet things are too sweet and have little taste for salt. So, all of the strategies that seemed to work last time are not relevant now…. I will work through this.
Support from friends and family was great. My son Jeff again went through it with me all the way. There were only a few nursing details on which he actually subbed for me. Otherwise, he was there at all hours to help as I needed him. It became habit forming. He is a good man and I am so proud of him and love him so much. We received good news that my colleague and friend in Japan Atsushi Ishimatsu and his family all made it through the earthquake. One of his sons was living in Sendai which was heavily damaged. I continue to receive calls and cards and emails from far away all conveying a message of support and friendship and all good wishes.
Thank you.
Here are the dates of importance.
March 28 …2nd PET scan will evaluate what effect rounds 1 and 2 have had on the tumors….
April 6…will get the resuts of the PET scan and make plans that day for the next round of treatments. I am unsure but some form of a round 3 will begin that very day.
Another date… March 30, the two-time postponed Disneyland trip for Princess Melanie will take place…. Attending with the princess will be her three servants in waiting, mom, grannie, and me.
Feeding aside, I am feeling better everyday and went out to the lab for a bit today to check on stuff. Will likely work a few days next week as I need to keep up with the students. One of the hardest things is boredom. Not feeling well enough to sit up and do something yet not feeling the need to take a nap.
jbg
Hi, All, This is not a response to Jeff's latest entry, but about two weeks late. This business of blogs, facebooks, twitters is bewildering for this old guy. Bob Rubin and I saw Jeff during the weekend of March 34 (although I had to depart early). He looked really good, perhaps one of the cosmetic benefits of late night cream rubdowns, and we were impressed with his spirit and attitude. We spent part of Friday at Scripps, and it was clear that he enjoyed being a fish physiologist (and master of his realm) once again, rather than patient. Judy and I send our very best wishes for next bout of treatment and recovery. Roger C.
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